Saturday, July 18, 2009
I'd love to say I am making all this great progress but the truth is I am stalled. I haven't been feeling great physically. My joints are sore and and my back and left hip are especially painful. I'm fearful that this may be the start of another auto immune condition like rheumatoid arthritis. I don't even want to go to the doctor. For now I taking lots of Advil and hoping whatever it is resolves on its own. I have been swimming with the kids every couple of days and generally trying to stay active with them. In the past two weeks we have gone to the beach, pool, swimming lessons, zoo, spray park, and some play dates. I have also started taking a multi-vitamin. Small steps toward a healthier me. I wish it was all actually making me healthier!
Friday, June 26, 2009
Saturday, June 20, 2009
A New Normal
I went out to breakfast with a few of the women from my Addison's support group. It is so good to take to others who are also dealing with Addison's Disease. It is such a poorly understood condition by so many - including doctors. It good to hear how others deal with the daily challenges and issues. After talking with some of them I am feeling like I need my medications tweaked a bit. I am going to ask my endo to up my Synthroid for my hypothyroidism. I know I am in the normal range but I am wondering if just a little more would make me feel better while still keeping me in the normal range. I want to badly to feel good. We also had a nice discussion about the mourning process that goes with being diagnosed with a cronic disease and how to accept a new "normal". I admit I am still mad in many ways. I thought infertiliity was my cross to bear in this lifetime. I didn't know that was just the start. Maybe by writing out my thoughts and feeling I will be better able to move to the acceptance stage and learn how to work around it as one one of the women suggested.
Thursday, June 18, 2009
52 Pounds in 52 Weeks
I'm setting a weight loss goal. I want to lose 52 pounds in the next 52 weeks. Given my health challenges, I think that is a challenging yet achieveable goal (can you tell I write IEPs for a living). That would put me about 10 pounds above my goal weight but it is a weight that I have easily maintained in the past. By losing 52 lbs. I would reduce my BMI from 34.7 to 25.5 moving me from the obsese range (what an ugly word) to within 4 lbs. of normal. I can do this. I want to do this. I need to do this.
Wednesday, June 17, 2009
Now that I have started working out, I need to get the food under control. I feel like is some ways I do eat healthy but obviously my diet still needs to be improved. When I was pregnant with my twins, I ate a lot of protein and fat so they would be good size when they were born. It worked, Katelyn was 6lbs. 12 oz. and James was 7lbs. 6oz and I lost all the weight by 3 weeks postpartum. But then I was nursing two babies and taking care of two babies. I never knew if I was going to get another chance to eat so I started overeating or eating to keep my energy up. Then I started eating to "reward" myself at the end of day or to relieve stress.
If that wasn't enough to pack the weight on, I started feeling really awful - no energy, painful joints, couldn't wake up or get out of bed in the morning. I thought it was just life with twin toddlers. Turned out I had developed Addison's Disease and that was why I felt so bad. I'm glad I was diagnosed but now I have to take Prendisone daily for the rest of my life. So that is the short story of how I got here. Now I need to figure a way out.
If that wasn't enough to pack the weight on, I started feeling really awful - no energy, painful joints, couldn't wake up or get out of bed in the morning. I thought it was just life with twin toddlers. Turned out I had developed Addison's Disease and that was why I felt so bad. I'm glad I was diagnosed but now I have to take Prendisone daily for the rest of my life. So that is the short story of how I got here. Now I need to figure a way out.
Wednesday, June 10, 2009
I went swimming today
It was harder than I remembered to swim laps but I did it. I only managed about 20 minutes but I keep reminding myself that any exercise is better than no exercise.
Monday, June 8, 2009
Addison's Disease
I have Addison's Disease aka Adrenal Insufficiency. I have been trying to come to terms with the impact it has had on my life. I don't think any person in my life knows what this is like for me on a daily basis. I myself would like to forget but I can't because it hits me in the face as soon as I wake up each morning and I have to take my Prendisone. For the next hour I am queasy. Ideally I would take it with food but I also take my Synthroid as the same time and I need to take that on an empty stomach. So I pop my little pile of pills and grin and bear it, knowing they literally keep me alive. The Prendisone itself is such a bitter pill - in so many ways.
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